special needs parenting

  • U: Unrequited Love

    I poured my love into a wellI could not see the bottom of.Each word I said dissolved like rain,each name I called rose up, then fellback into silence, back to you,unreachable as morning sky.I learned to love without return.I learned to give without a ledger.I learned that love could be a verbthat needs no echo,…

    Read more →

  • J: Jo Jeeta Wahi Joyful

    We all remember the final scenes of Jo Jeeta Wohi Sikandar. Aamir Khan racing on his bicycle through the final lap of the circuit and winning the race. The ribbon is floating around him and he, his family and friends are all shedding tears of joy. In real life, there are two kinds of victories.…

    Read more →

  • F: Future Perfect, Not Tense

    I will have held Little Miss’s hand through every storm,And she will have taught meWhat strength really looks like.Little Miss will have laughedIn a world that didn’t always understand herAnd that laugh will have beenThe most honest soundI ever heard.There will have been hard mornings,Doors that wouldn’t open,Words that wouldn’t come,Days that asked more than…

    Read more →

  • I spent 12 years in banking before I became the primary manager of a household with one kid, a dog, and a therapy schedule that rivals a small clinic’s. With a school quite far from home and multiple therapies all of which need to be logged perfectly so as not to overstimulate or overtire Little…

    Read more →

  • A: Advocacy Fatigue

    In the banking world, we talk about “burn rate” or “cash burn”, the speed at which a company spends its venture capital or cash reserves before generating a profit or cash flow. In the world of special needs parenting, we have our own burn rate. Advocacy Fatigue isn’t just being “tired”. It’s the cumulative exhaustion…

    Read more →