KCNQ2 mutation
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I poured my love into a wellI could not see the bottom of.Each word I said dissolved like rain,each name I called rose up, then fellback into silence, back to you,unreachable as morning sky.I learned to love without return.I learned to give without a ledger.I learned that love could be a verbthat needs no echo,…
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Sensory play is any activity that stimulates a child’s senses: touch, sight, hearing, smell, and taste. It’s a wonderful way for little ones to explore the world while developing fine motor skills and focus. The best part? You don’t need expensive toys to get started. You can create engaging experiences using everyday items from your…
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In the quiet spaces, deep and still,A magic grows that words can’t fill.She doesn’t need a golden tongue,To be the song his heart has sung.With a gentle touch or a steady gaze,She guides him through the worldly maze.Her wings are made of strength and grace,Reflected in her peaceful face.Though silence dwells where speech might be,Her…
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I will have held Little Miss’s hand through every storm,And she will have taught meWhat strength really looks like.Little Miss will have laughedIn a world that didn’t always understand herAnd that laugh will have beenThe most honest soundI ever heard.There will have been hard mornings,Doors that wouldn’t open,Words that wouldn’t come,Days that asked more than…
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I spent 12 years in banking before I became the primary manager of a household with one kid, a dog, and a therapy schedule that rivals a small clinic’s. With a school quite far from home and multiple therapies all of which need to be logged perfectly so as not to overstimulate or overtire Little…
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No one prepares you for the moment when you realize your child’s life will not follow the path you imagined. When my daughter was diagnosed with a genetic disorder that could cause developmental delays, I felt my definition of parenthood shift overnight. What I didn’t know then was that this unexpected journey would teach me…
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When I was about 9 or 10 years old, I had watched a movie Chachi 420. It had a song, “Dauda dauda bhaaga bhaaga sa” (it roughly translates to someone who is running around and rushing). Last week I felt the same happening to me. Owing to the constant bouts of cold, Little Miss had…
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Saturday was Annual Sports Day at Little Miss’s school. Children from all the branches of her school were participating and I too, feeling very brave and slightly anxious, registered her name. We have spent so much time keeping her way from crowded places and gatherings to protect her from the sensory issues that every event…
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Navratri went by two weeks ago and Diwali is less than a week away. The season of festivals is here and I find this time very joyous. Navratri is celebrated with worship of Durga in her nine forms, Navadurga, and also by playing garba. Navratri is a kaleidoscope of colours, with a different colour hue…
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When you’re parenting a child with special needs, you live in a world of extremes. You’re constantly toggling between intense advocacy and quiet moments of joy, between deep worry and deep, unexpected humor. We often feel this pressure to be “strong” or “grateful,” as if acknowledging the hard parts invalidates the good parts. The truth…