special child
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Some Julys are wetter than others not because of the sky but because of what happened underneath it. The fevers weathered, the small hand held, the ordinary miracle of everyone waking up, at last, cool to the touch.
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The special needs parent community is one of the most helpful communities on internet today. It provides a sanctuary to those navigating various medical issues, therapies and emotional highs and lows of parenting. However, in doing so sometimes our whole digital space can become completely about this. Being a “Special Needs Mom” is a vital…
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I poured my love into a wellI could not see the bottom of.Each word I said dissolved like rain,each name I called rose up, then fellback into silence, back to you,unreachable as morning sky.I learned to love without return.I learned to give without a ledger.I learned that love could be a verbthat needs no echo,…
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I will have held Little Miss’s hand through every storm,And she will have taught meWhat strength really looks like.Little Miss will have laughedIn a world that didn’t always understand herAnd that laugh will have beenThe most honest soundI ever heard.There will have been hard mornings,Doors that wouldn’t open,Words that wouldn’t come,Days that asked more than…
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Integrating special needs individuals into fiction, specifically neurodivergence or physical disabilities, is a delicate balance. When done poorly, it often falls into “The Magical Disability” trope. These clichés often strip the character of their humanity For example, they will show you a child with prosthetic legs running and caption it with “What’s your excuse?”. This…
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I spent 12 years in banking before I became the primary manager of a household with one kid, a dog, and a therapy schedule that rivals a small clinic’s. With a school quite far from home and multiple therapies all of which need to be logged perfectly so as not to overstimulate or overtire Little…
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In the banking world, we talk about “burn rate” or “cash burn”, the speed at which a company spends its venture capital or cash reserves before generating a profit or cash flow. In the world of special needs parenting, we have our own burn rate. Advocacy Fatigue isn’t just being “tired”. It’s the cumulative exhaustion…
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It is that time of the year when we, the bloggers start working on Blogchatter A2Z Challenge. Every year in April, you’ll find me working on my tablet or phone or laptop, depending on how much time I have or where I am; researching, writing and posting on topics starting from alphabets A to Z…
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No one prepares you for the moment when you realize your child’s life will not follow the path you imagined. When my daughter was diagnosed with a genetic disorder that could cause developmental delays, I felt my definition of parenthood shift overnight. What I didn’t know then was that this unexpected journey would teach me…
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Saturday was Annual Sports Day at Little Miss’s school. Children from all the branches of her school were participating and I too, feeling very brave and slightly anxious, registered her name. We have spent so much time keeping her way from crowded places and gatherings to protect her from the sensory issues that every event…